BEN'S DREAM & THE SANFILIPPO RESEARCH FOUNDATION

What is Ben's Dream?
Ben's Dream is a foundation set-up for Ben Siedman, a 10-year-old diagnosed with Sanfilippo Syndrome, a rare and fatal inherited genetic disorder. Ben and thousands of children afflicted like him have a life expectancy between 10 and 15 years.

What is Sanfilippo Syndrome?
Sanfilippo Syndrome is a rare and catastrophic genetic disorder. Children afflicted with Sanfilippo Syndrome are missing an essential enzyme that breaks down strings of a complex body sugar called heparan sulfate. The partially broken-down sugar, or mucopolysaccharide, accumulates in the brain and the body’s cells and tissue causing progressive damage. The storage process affects children’s appearances, bodily functions and development. Sanfilippo children tend to look alike and have similar health problems.

How is the Boston Men's Baseball League involved?
The Boston White Sox from the MABL have officially changed their name to the "Ben's Dream White Sox" to help raise awareness of Sanfilippo Syndrome. White Sox players will also wear Ben's Dream patches on their jersey in honor of Ben Siedman. Additionally, the Cooperstown Classic Baseball Tournament held June 9-10 at the Baseball Hall of Fame will be played with a focus on raising additional awareness. Later in the 2007 season, a local baseball tourney is being planned to raise awareness and generate funds to help find a cure for Sanfilippo Syndrome.

To learn more or to make a donation:
Visit: http://www.bensdream.org.